Cystic Fibrosis: The Year in Review
Chronic illnesses typically feel like a constant in patients’ lives. The constant nature of a chronic condition is actually part of the definition. Although symptoms may ebb and flow, patients have to remain vigilant all the time to ensure they take proper precautionary steps to mitigate their symptoms.
When dealing with a serious chronic condition like cystic fibrosis, it can be easy to get bogged down in the effort it takes to manage the disease on a day to day basis. While it’s certainly no small feat to live with cystic fibrosis, it’s also important to remember that things are always changing.
In the spirit of looking forward, hopefully towards new breakthroughs in research and treatment, we’re taking a look back at some of the most significant moments involving cystic fibrosis in 2017.
Notable events throughout the year
In terms of advancing in the fight to end cystic fibrosis, raising awareness about the condition and raising funds that can support new research and treatments are some of the most important factors. To that end, in 2017 there were a number of successful events designed to help get the word out. One of these events was “Dance Away Cystic Fibrosis” hosted by Rowan University in Glassboro, New Jersey. The event was held for the fourth consecutive year in honor of former student, Jessica Bleistine. In 2012, Jessica died from lung failure due to cystic fibrosis. Jessica was a student at Rowan and also served as the Vice President of Special Events for the school. Since then, the dance has been held in her memory and to raise funds to contribute to the fight against the disease.
Another event that was held for the fourth consecutive year in 2017 was the Charleston Mom Prom. In March of this year women from the greater Charleston, South Carolina area joined together for a night of food and fun to raise money for the Cystic Fibrosis Foundation. Attendees were encouraged to wear their Mardi Gras best and were promised a dynamite set of top hits and old school favorites from the DJ. In addition, prizes were awarded for best dressed – classy and tacky. The proceeds from the tickets as well as an auction held at the event were donated to the Cystic Fibrosis Foundation to help continue funding their work to fight this disease.
To round out the year on a positive note, attendees recently gathered in Pittsburgh, Pennsylvania for the annual 65 Roses Sports Auction. This year the event was hosted by Steeler’s defensive end, Cameron Heyward. Heyward certainly isn’t new to important causes, he’s worked to provide birthday gifts for foster children and is later launching an initiative to help children with asthma. At the Sports Auction, guests were treated to an autographed football, a Pittsburgh themed dinner, and a live and silent auction with all proceeds benefiting the Cystic Fibrosis Foundation.
Read on to learn more about the various treatment and research advancements that took place in 2017 for cystic fibrosis.