The Celiac Disease Foundation
The Celiac Disease Foundation, a California-based celiac advocacy group, is participating in various research and trials. The foundation is combining with another research network that will allow celiac disease patients to input various information about their experience with disease and other medical conditions they have related to celiac. This way researchers can determine patterns and various connections between other autoimmune diseases. The appealing part of this study is how patients are able to conduct their own research and can decide how much information they want to provide. It is all up to the patient to determine what is studied about them and what they want to contribute to the group. It is a simple and easy way for these people to make a difference says Marilyn G Geller, chief executive officer of CDF. Researchers will not have access to any of this information unless patients give it out willingly after being contacted by the CDF. “Right now patients with celiac disease have little power in terms of shaping the future of their disease,” Geller stated. She also said that the registry of information should help increase the amount of studies, which will increase awareness and funding to find a permanent cure for celiac.