Knowledge is power, and we fear the unknown. Fear is a stressor, but when we are knowledgeable about a situation, that power lets us act more decisively and with less stress. Cystic fibrosis is a complex disease and we are still learning more and more about what causes it and what effects it has on the victim’s body, so learning about this disease is not a one-time event.
The symptoms of their disease will change over time and can change suddenly, and if you know about these possibilities, when it happens you will not be as stressed as if it was a surprise.
Plus, the more you know about the disease, the better support you will be able to give to your loved one. Combine that with how everyone is different and reacts to things differently, if you stay well educated, you will be able to deliver better care than anyone else.