So with the promise of an effective new treatment, one might wonder when it would be available, and how patients would have access to it.
For the time being, a patient can communicate with his or her healthcare provider about participating in a clinical trial. In spite of previous issues between the FDA and researchers who have not been very forthcoming with information, many steps toward open communication and transparency have been taken. While some degree of risk is always characteristic of research, one can find out as much information as possible about the study itself and what is involved. At the same time, a patient who decides to participate in this type of research, would need to remember that the study is not a replacement for treatment of his or her condition and should maintain constant communication with all healthcare professionals involved.