Tips for Speaking to Someone Diagnosed with Parkinson's Disease

While it can be subjective with what each individual faces and finds offensive, a rule of etiquette for discussing Parkinson's disease can be touchy for numerous individuals. Whether an individual faces the day-to-day struggles of Parkinson's disease or not, articles relating to Parkinson's and proper prescript could make the lives of those with Parkinson's more comfortable. There are certainly numerous misconceptions and most patients facing Parkinson's are generally open to letting one know what makes them comfortable and what does not. If someone is finding it difficult to express these feelings, discussing concerns with a therapist and/or medical professional could be an advisable solution. Although Parkinson's can affect people differently, keeping certain sensibilities in mind at all stages is courteous.

Avoid any discouraging message

There can be sometimes unwanted stress since patients with PD have difficulties with household chores. The person is not to be blamed. It is a demoralizing remark to pass discouraging comment towards change in appearance or housework. It not only causes embarrassment but also unwanted stress. The stress can worsen by commenting on people with PD. There can be a greater strain due to unwanted comments and since the judgement is being passed hence there is a constant worry.

Breaking stereotypes

Surrounding PD there are numerous stereotypes. It can be uncomfortable to address some of these issues but it is important for overall treatment to break down barriers for those facing attention and daily management of the disease. It is a common misconception that individuals with PD have difficulty walking. Judgement should never be passed if they park in a handicapped space or get to receive various assistance. Walking can become difficult due to gait issues and composure. A plethora of activities can be enjoyed by those with PD. Assumption should never be made what people with PD would do with their free time. It is never acceptable to presume worse in each one-on-one case. It is extremely degrading and noxious to assume that such people do nothing the whole day. Many people with PD enjoy puzzles, writing, watching movies, reading, outside activities, do volunteer work, fandom universes and much more than these. 

Never assume what the patient is troubled with

It can be insensitive to assume what they might be troubled with. It is advisable to keep comments and questions to oneself unless the relationship has been established at a very personal level such that you can ask them about their personal feelings and daily management. People with PD want that without any judgement their condition should be understood and they should be treated as equals. Some might find the word disease offending hence it is important to respect their wish.

Avoid questioning the experience

Such people are more prone to judgement and questions. These people with worry that they will receive unnecessary attention although they might not show the typical signs. It is necessary to keep in mind that each person with PD has different experience and throughout the stages he or she is treated in different ways. The symptoms shown daily may not be the same. This can cause confusion to those without PD. Negative and reinforced stereotypes are caused by assumptions.  It is difficult to find out what the person with PD is facing since each case is different.  Such people may not enjoy the questions. It is important that before you start with the questions first discuss their comfort levels, their boundaries of communication. Avoid questions that are stereotypical and discuss issues that are satisfactory. This will avoid any confusion and insensitivity.  It is better if you wait till the person comes to discuss the issue with you.

Understand better and assist

Those seeking out ways to understand PD can take help of several blogs, studies conducted, articles, forums, scientific reports, take help of health professionals. By avoiding stereotypes and helping the community in a positive fashion to become a proponent one can be an advocate for those with PD.