Let them make decisions once in a while
A patient that feels that they have no control over their social life, healthcare or even education is likely to feel anxious and even depressed. Allowing them to participate in the decision making, particularly around their treatment options is a good way to bolster their positive emotions.
While it can be difficult for a parent or caregiver to relinquish control over the decisions that are made for their child or patient, it’s actually a critical step in helping them to develop emotional intelligence which in turn, helps them to cope with having a disorder like DMD.
Start small, when a child is old enough to understand what is going on with them; let them sit in on conversations with medical professionals. Let them listen to what is being said about their condition and, more importantly, let them express their feelings towards a particular treatment choice.