Their son participated in a clinical trial for SMA
Steven and Gloria were able to get their son into a clinical trial for a developing SMA drug where he began to gain some strength back. Sadly, Isaac suffered from a collapsed lung followed by three weeks in the ICU. For his last two “beautiful weeks”, Gloria and Steven brought him home. “We have always felt that if he had been able to start the treatment when he was younger before the disease had progressed so much, he would have lived,” Gloria lamented.
“The grief that comes with losing a child is unimaginable. I don’t know how we made it through the drive home from the hospital without him, but we did. I don’t know how we made it through the viewing and funeral without my broken heart ceasing to beat in my chest, but I did.”
Photo source: People