Stay informed and knowledgeable so you can make better decisions
The first thing to do is to make more informed decisions. So try to gain as much knowledge as possible by reading information and gathering info about your disease. One great way to get informed is to look to your medical team. Make every effort to get to know them in person and ask them questions about your diagnosis. these are people who are here to help you and have dedicated their careers to helping people survive this illness. Talk with your doctor and make them valuable resources. Try to choose a doctor who is good at communication and empathetic to your needs.