Share What It Is Like to Live with an Invisible Illness

Carol Rhodes: Share What It Is Like to Live with an Invisible Illness
HEALTHJOURNEYS
Carol Rhodes Fibromyalgia

I have a 22 yr old son with autism, bipolar, severe anxiety and depression who doesn't want to leave the safety of the house. A husband who works part time but is trying to be both of our career, along with him getting skin cancer cut out every 6 months, last one was his 1st skin graft. He also has 4 children from a previous...

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Fibromyalgia has a lot of misconceptions attached to it. What do you wish people understood about fibromyalgia?

That it is not curable, it is progressive and can flare for no reason; can try and manage but sometimes it gets very frustrating. Can plan to do something but just can't do it even if you wanted to. Sometimes you can hide the pain and deal with it; other times it just gets to be too much and you need to stop, rest, and have a down, not do anything day. Everybody is different and some things work for some and not for others. 

Has any one told you that "you don't look sick?"

I have been told that if I lose weight it will all go away; most of my support group are skinny. Don't know what they are talking about! 

Tell us, who is your biggest support system while coping with fibromyalgia?

GP, Practice nurse, friends, craft group, and husband, son and sister