Share What It Is Like to Live with an Invisible Illness

Cyndi-Wallace-Sipes: Share What It Is Like to Live with an Invisible Illness

Fibromyalgia has a lot of misconceptions attached to it. What do you wish people understood about fibromyalgia?

I'm not irresponsible.  I work twice as hard to do what comes natural to most.  Yes, I've learned how to manage my fibro, but I still get flares.  No your MLM product will NOT cure fibro. Yes, I know sometimes I choose to do things that bring on flares. No I won't sit still and veg... I want to live life. I identify as a survivor, not a victim of fibro. Oh and for the love of God stop saying you have fibro fog when you don't even know what fibro is!!!!  You had a brain fart, that's much different than fibro fog!

Has any one told you that "you don't look sick?"

Yes, I tried 10 times to get disability, the last time while I had cancer, I was denied. I do have a handicap plaque. When I park in handicapped spots, people stare and they accuse me of not needing it. When I park close in a non-handicap spot I have had people tell me I have my own place to park and stop stealing theirs.

Tell us, who is your biggest support system while coping with fibromyalgia?

God and myself. My husband has just been diagnosed with fibro and he cries realizing how much he didn't support me and just how much pain I'm in 24/7. However, I have learned that as long as I trust in God and myself, I can get through this.  I refuse to be a victim and that has helped a lot!