Pain, fatigue

Julie Files Fibromyalgia

I have had Fibromyalgia for about 20 yrs and seem to keep under control quite well. Then a few years ago (about 5) I was diagnosed with Dysautonomia, now I can hardly do anything much. I still exercise but need to lie down often. I feel the heat terribly and perspire terribly when I do things. Fatigue is my main enemy....

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Fibromyalgia has a lot of misconceptions attached to it. What do you wish people understood about fibromyalgia?

How it can limit things you can do... How much pain you suffer and fatigue.

Has any one told you that "you don't look sick?"


Tell us, who is your biggest support system while coping with fibromyalgia?

I am lucky to have a couple of friends who do understand and my mother who has it also.  My doctor is also good support.