Share What It Is Like to Live with an Invisible Illness

Mary Burch: Share What It Is Like to Live with an Invisible Illness
Mary Burch Fibromyalgia

I am in mid 50's and since I was diagnosed my life has not been the same. I've lost all of my friends and I am unable to do the things I used to love to do. I still desire in my mind to do those things it is that I simply can't due to pain or from one of the other side effect that this horrible condition has. The medical...

View More

Fibromyalgia has a lot of misconceptions attached to it. What do you wish people understood about fibromyalgia?

That I hurt all of the time yet inside I am still ME. I still want to do things and go places, at least to be invited. It hurts that ALL of my friends have left me alone to deal with this by myself.  

Has any one told you that "you don't look sick?"

All of the time I hear, you don't look sick. Frustrating, yet when you try to explain it seems to fall on deaf ears. The other line I hear is "oh, I have that" from people, yet I get the feeling they haven't a clue of what it is really like. They just want to jump on the bandwagon.

Tell us, who is your biggest support system while coping with fibromyalgia?

For me personally, I do not have a support system. I am alone in my struggles. Even the people who I have to see for treatment haven't a clue of what I am going through. When I have a flare up I basically have to just lay on the couch until it passes, however, long it takes.