Fibromyalgia has a lot of misconceptions attached to it. What do you wish people understood about fibromyalgia?
I would love for people to understand fibromyalgia is real, not in my head, and it is a very painful life. Walking is very hard for me now, they're ordering me a hoveround so I can get around better. I still walk even though each step is like walking on knives...so so painful...every part of my body is in pain and does not let up; fibromyalgia affects your body in so many ways. I am sensitive to light now, I have night sweats, dry and itchy skin, even being touched hurts. I am fatigued, where I just don't sleep well. I could go on and on. The main thing is never give up on yourself. Take a day at a time, research your illness, learn and try thing to make your life a little better.
Has any one told you that "you don't look sick?"
Yes so many people over the years, family, friends, I used to let it get to me. I would just sit and cry about it. A doctor told me one time, "Sharon you know you are in pain, and you know how you feel as far as doing things, and because you are sick does not mean you can't look good, so don't worry about what others think, you do what you need. If it's rest or walking or fixing your self up, you do it," so I live my life. It is a painful life but it is my life, so I keep my faith and go on.
Tell us, who is your biggest support system while coping with fibromyalgia?
God and my faith, my wonderful husband Larry. He has been by my side since day one. When the doctor told me I have fibromyalgia, we both sat in the car and cried together. My family and friends.