My Diagnosis Story

What symptoms led up to your diagnosis?

Abdominal cramps, frequent urination and swollen abdomen.

What tests did your doctor do, and what was this experience like?

I was 69 years old at the time and undergoing extraordinary stress that involved numerous court cases and appearances.  I kept complaining to my doctor that I thought I had bladder infections but the urine tests came back clear.  After a few months my doctor suggested an ultrasound and an ultrasound via the vagina.  This showed a large mass on the right ovary.  I was then sent for a CT scan that showed the mass in more detail.  

Upon learning about your diagnosis- what happened next?

I was then referred to a gynecologist/oncologist who at first thought the mass was benign as it was circular and the shape of a soft ball.  I was not particularly worried as I thought that the mass was benign.  I was admitted to hospital for a laparotomy. I was found to have a right ovarian tumour which was densely adherent to the right pelvic sidewall and vaginal vault. Both ovaries were removed and  pathologies taken.  The pathologies revealed that the mass was indeed an adenocarcinoma and a full staging procedure was performed. The pathologies also revealed that the cancer had an unusual and rare pathology.  It was a slow growing cancer.  I had apparently had this for quite some time. When I was told the mass was cancer and that I had to have chemo I was shocked. I worried about my husband who was 80 at the time and I was concerned about who would care for him.   Because of this for a few days while I was in hospital, I was very depressed and I asked for counselling.   My doctor then came to me and told me the pathologies had revealed it was a slow growing cancer and that it had not spread to surrounding organs. It was decided that because of the pathology of the cancer I was to be treated conservatively and watched closely.  The doctor stated my  chance of a cure was very good and that the marginal benefits of treatment are probably outweighed by the possible complications of chemotherapy.   It is now five years since my operation and my doctor has told me that he thinks I am cured.

The cancer changed my life.  I decided that I had to avoid stress and people or events that caused stress. My husband and I decided to sell our home in the city and move to a quiet life in the country. We now have a lovely home in a country town with picturesque country side all around us. There is a great sense of community.  The people are friendly and look out for each other.  I have made new friends.  I just try to enjoy each day, remembering that I am very lucky to be still here to tell my story.