Healthy Living

What Healthy People May Not Realize About Cystic Fibrosis

Final thoughts

Having cystic fibrosis can be challenging and overwhelming. Sometimes, individuals who are healthy or even individuals who share your disorder may not understand you – your symptoms, your beliefs, your thoughts or your concerns. It can be frustrating but unless they have walked a mile in your shoes, you cannot expect them to fully understand. In times of need, reach out to a family member, friend, counselor, or a support group. If you can find the support you are looking for, you can develop coping mechanisms to help you get through everyday challenges that CF may present. “A CF parent messaged me yesterday to say his daughter regained her lung function after an intense infection. I whooped in the middle of a cafe and wiped away a tear. He was touched that I was so excited for his daughter, whom I had never met. ‘Of course. She’s my cyster, after all,’” wrote Dell. The important thing to remember is that you are not alone – there is a whole cystic fibrosis community right behind you.