Andrea Mazzarelli

Muscular Dystrophy
Torrington, CT

Maintaining Independence with Muscular Dystrophy

Whether you have MD, or a child with MD, maintaining independence is crucial. What do you do to make sure that you or your child still have a sense of independence? My daughter...

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Maintaining Independence with Muscular Dystrophy

Sue Smith

Muscular Dystrophy

Maintaining Independence with Muscular Dystrophy

Whether you have MD, or a child with MD, maintaining independence is crucial. What do you do to make sure that you or your child still have a sense of independence? I keep myself...

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Approaching the Future with Muscular Dystrophy

Kayla Jung

Muscular Dystrophy

Approaching the Future with Muscular Dystrophy

Most forms of muscular dystrophy are fatal. How do you approach this diagnosis and your future with it? I focus on the positive side. I don't let it stop me from what I want...

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If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Kimberly Lockhart-Vaughan

Muscular Dystrophy

If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Go ahead. Vent your frustrations. Share how you persevere in the face of the everyday struggles of having muscular dystrophy. Dear Muscular Dystrophy,You took my daughter way...

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If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Carolyn Kroll

Muscular Dystrophy

If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Go ahead. Vent your frustrations. Share how you persevere in the face of the everyday struggles of having muscular dystrophy. You have taken everything from me, the list is just...

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If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Angelia Ortega

Muscular Dystrophy

If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Go ahead. Vent your frustrations. Share how you persevere in the face of the everyday struggles of having muscular dystrophy. First off, I want to thank you for humbling me and...

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If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Cynthia Maquez Streit

Muscular Dystrophy

If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Go ahead. Vent your frustrations. Share how you persevere in the face of the everyday struggles of having muscular dystrophy. YOU TOOK MY OH SO LOVED, BEAUTIFUL, PRECIOUS SON...

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If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Barbara Bean

Muscular Dystrophy

If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Go ahead. Vent your frustrations. Share how you persevere in the face of the everyday struggles of having muscular dystrophy. Aiden Bean says: ”Go away and pick on someone your...

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If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Jillena Millington

Muscular Dystrophy

If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Go ahead. Vent your frustrations. Share how you persevere in the face of the everyday struggles of having muscular dystrophy. You will never win with me. I will fight you forever....

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If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Andrea Mazzarelli

Muscular Dystrophy
Torrington, CT

If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Go ahead. Vent your frustrations. Share how you persevere in the face of the everyday struggles of having muscular dystrophy. I just wish my son and I could ring that bell!!!...

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If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Christy Ratliff

Muscular Dystrophy

If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Go ahead. Vent your frustrations. Share how you persevere in the face of the everyday struggles of having muscular dystrophy. I hate that you robbed what should have been for...

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If You or Someone You Love Were Able to Be Symptom-Free for One Day, How Would You Spend the Time?

Vicki Tyler Denton

Muscular Dystrophy

If You or Someone You Love Were Able to Be Symptom-Free for One Day, How Would You Spend the Time?

What would you do that you aren't able to do now? Walking around a place called Scenic Mountain in my town.  

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If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Vicki Tyler Denton

Muscular Dystrophy

If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Go ahead. Vent your frustrations. Share how you persevere in the face of the everyday struggles of having muscular dystrophy. I’ve had MD since I was 28 and I am now 63, almost...

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If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Elsa N Sermeno

Muscular Dystrophy

If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Go ahead. Vent your frustrations. Share how you persevere in the face of the everyday struggles of having muscular dystrophy. God is on my side. AMEN!!!

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If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Connie Figueroa

Muscular Dystrophy

If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Go ahead. Vent your frustrations. Share how you persevere in the face of the everyday struggles of having muscular dystrophy. Horrible disease, lost my only son to it.

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If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Linda Pridgen

Muscular Dystrophy

If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Go ahead. Vent your frustrations. Share how you persevere in the face of the everyday struggles of having muscular dystrophy. Leave my kids and grandkids alone! I hate you! This...

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Abby Miller

Muscular Dystrophy

If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say?

Go ahead. Vent your frustrations. Share how you persevere in the face of the everyday struggles of having muscular dystrophy. How do we find a way to get rid of you forever?...

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If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say? | 22/08/2018

Terry Johnson

Muscular Dystrophy

If You Were Able to Come Face to Face with Muscular Dystrophy, What Would You Say? | 22/08/2018

Go ahead. Vent your frustrations. Share how you persevere in the face of the everyday struggles of having muscular dystrophy. Just tears, lots of tears when I watch my grandson...

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How Your Life Has Changed with Muscular Dystrophy

Ashley Fender Patterson

Muscular Dystrophy

How Your Life Has Changed with Muscular Dystrophy

How did you learn that your child has muscular dystrophy? The first sign I noticed was Channing had bad hypotonia, and he was very weak!! Since your child has been diagnosed with...

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Mae Baak - What It's Like to Be a Mom to a Child with Muscular Dystrophy

Mae Baak

Muscular Dystrophy

What It's Like to Be a Mom to a Child with Muscular Dystrophy

What thoughts went through your mind when your child was diagnosed with muscular dystrophy? The same doctor who attended to our other son during his illness with a brain tumour...

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