Fibromyalgia has a lot of misconceptions attached to it. What do you wish people understood about fibromyalgia?
To be 50 years old and getting out of bed, off a seat, out of a car and walking like a crippled 90 year old (my apologies to 90 year olds who are still fit and sprightly). To be dead tired one minute and unable to sleep the next. For your whole body to hurt with every movement and to get dressed is so hard. To do housework or gardening and then suffer even more for the next couple of days. To stop mid sentence or at the start of saying something and you've totally lost what you were about to say. To forget when the last time was that you didn't feel so much pain, to want to get a full time job but you wonder how the hell you'll get up each day and go to work when you can barely walk across a room. It's not always that bad but it's bad more times than it's good. To wonder how much worse it might be when I'm 70 or 80 years old, will I be able to do anything at all? Like I said, it's so debilitating and depressing.
Has any one told you that "you don't look sick?"
No one has said to me that I don't look sick but I'm sure they all think it. I just wish they could spend a day in my body and see how much fun I'm not having.
Tell us, who is your biggest support system while coping with fibromyalgia?
My family and my Rheumatologist are my supporters but i'm sure my family get sick of hearing my complaining especially when you get sharp stabbing pains out of the blue and they can occur anywhere on your body even in your eyes, they are a 10 out of 10 pain and you can't help but go "ooh" when they happen because they're so sharp. I'm always thinking to myself "Beam me up Scotty".