Fibromyalgia has a lot of misconceptions attached to it. What do you wish people understood about fibromyalgia?
That it is not 'All in the head'; that phrase needs to be clarified by 'It is the brain sending signals to the nerve endings' as the former makes us feel we are not being taken seriously. My main concern is, I wish my family would try at least to understand that this is serious and not just an ailment. To be honest I have given up explaining anymore and keep to myself as it is much easier than trying to explain.
Has any one told you that "you don't look sick?"
A few, my children are the worse offenders. They think that because I am walking and talking and keep a smile on my face that there is nothing going on inside my body, my own fault I suppose but I hate to be moaning all the time.
Tell us, who is your biggest support system while coping with fibromyalgia?